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world psoriasis day

If I Knew Then What I Know Now… Living with Psoriasis

October 19, 2021 By Lena 18 Comments

When I was just 11 years old, I asked my mom to look at my scalp. “It feels strange,” I worried. It was mildly itchy and had a tingly, almost burning sensation. Additionally, I had felt quite a few bumpy patches that I couldn’t keep my hands off. “Have you been picking?” she asked, knowing that I tended to scrape and pick at scabs. “Yes,” I admitted. “It’s very itchy!”

(That was only partially true. Have you ever seen the payoff from psoriasis scabs? They’re like the size of cornflakes and I found them so satisfying to peel! Disclaimer: Don’t do this!)

My mom marched me to our family doctor who a) diagnosed me with psoriasis and b) suggested a coal tar shampoo of which I can still recall the smell to this day. Faithfully, once a week, I tipped my head over in the bathtub while my mom massaged the shampoo into my hair and scalp. When I was older, I took over the duties myself, and weaned myself off the regimen when my psoriasis improved – though it never completely went away.

While I tried not to let my psoriasis get me down, it nevertheless affected me psychologically throughout my teens and twenties. I rarely wore my hair up, concerned that the scales and scabs would be more visible if I pulled my locks away from my scalp. I panicked when my hairdresser went on vacation, knowing I’d be too embarrassed to have a new stylist do my hair. When I dated, I freely disclosed my condition out of fear that a man would nonchalantly run his fingers through my hair – and draw back in surprise.

It’s obvious that while I thought I was “managing” my psoriasis, I was still allowing it to control my day-to-day. Fast forward to 2014, when, after decades of letting my psoriasis symptoms wax and wane, my joints flared to the point where I was disabled with swelling and pain for over six months. The diagnosis: psoriatic arthritis (PsA).

Today, I have mild flares of psoriasis on my scalp, lips and elbows, but I’m considered to be in clinical remission thanks to the medications I take for my psoriatic arthritis (which have the added benefit of keeping my psoriasis in check). I regularly see both a dermatologist and rheumatologist for my conditions, making sure to advocate for myself when I need to. Recently, I had a chance to sit down with Dr. Geeta Yadav, a dermatologist based in Toronto at Skin Science Dermatology.

In the days leading up to the interview, an idea started to form –  I wanted to share with you some things I wish I knew about psoriasis decades ago (that I know now). Dr. Yadav was knowledgeable and thoroughly answered my questions, which in turn allowed me to create the following list for you!
1. Psoriasis is a lifelong condition.

If I had clearly understood that my psoriasis would likely be with me for the rest of my life, I would have taken more definitive steps sooner to get my condition under control (and certainly before it progressed to PsA). …

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Filed Under: Lifestyle Tagged With: know pso, psoriasis, world psoriasis day

Psoriasis: End the Stigma

October 28, 2017 By Lena 21 Comments

One million Canadians are affected by psoriasis. One million. It can happen to anyone and the underlying cause is often unknown. But it’s not contagious; it’s not caused by a lack of hygiene and it’s certainly not some kind of strange growth, infection or malady.

Now can we please end the stigma?

Psoriasis, although somewhat of a commonly misunderstood skin condition, is actually pretty simple to explain. It happens when faulty signals in the body’s immune system trigger new skin cells to form in three to four days instead of 30 days. Because the skin cells grow too quickly, they are not shed normally and pile up on the skin’s surface, creating sores or lesions, often called plaques. Thick, silvery scales form atop these itchy plaques and sometimes cause painful red patches.

It’s not always pretty to look at, but you know what’s worse? Living with the punishing and unfair effects of social stigma, such as being misjudged as unclean or incapable of being touched without passing on a condition that is out of your control.

It’s just excess skin, people.

Because psoriasis is a visible skin condition, it can affect people’s feelings, behaviour and experiences. Does it surprise you to learn that psoriasis is associated with a lack of self-esteem, sexual dysfunction, anxiety and depression? We can change this, and it starts with you and me.
October 29, 2017 is World Psoriasis Day. It’s the perfect reason to educate ourselves about the condition and share ways that people with psoriasis can increase their self-esteem and regain a sense of control over the condition. …

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Filed Under: Lifestyle Tagged With: Canadian Association of Psoriasis Patients, world psoriasis day

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Lena Almeida

Toronto Blogger, Social Media Strategist for Listen to Lena Inc. Television & Radio Personality, Columnist and Speaker. Family Travel Expert. Star Wars Fanatic. Perfecting the Art of Conversuasion. Read More…

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